I’m Ash — a Lupus warrior and advocate.
My journey with Systemic Lupus Erythematosus (SLE) began in 2015, and since then, Lupus has changed my life physically, emotionally, mentally, and spiritually.
Today, I continue to battle Lupus Nephritis and the rare and painful Shrinking Lung Syndrome.
The past ten years have been filled with hospital visits, painful flares, exhaustion, uncertainty, and moments where simply getting up felt impossible.
In 2016, I turned my pain into purpose by founding Lupus SA NPO— dedicated to spreading awareness, educating communities, and supporting those living with Lupus. Through my Facebook page – Lupus SA NPO, Instagram platform – Lupus.sa.npo, and our WhatsApp platform we educate.
Writing my book, Life with Lupus, is one of the most personal journeys I have ever taken. It is a voice for every warrior silently fighting battles others cannot see. It speaks about diagnosis, motherhood, depression, anxiety, flares, survival, hope, strength, and perseverance.
My mission is simple: to spread awareness, inspire hope, support the Lupus community, and remind every warrior that their story matters, their pain is valid, and they are never alone.
