My Medical marriages


 

 

Any relationship in my life will be built on openness, trust, respect and honesty. Relationships are special more so when you are in charge of my health as it will have a direct affect on the quality of my health.

So we know that our relationships are refined when we go through trials and tribulations right… well say no more. Isn’t it funny how our true feelings and colours are revealed when we are faced with acting upon our words. When the proverbial paw paw hits the fan and all the things that we have been saying for years and years needs actions. Why is it then that we find out that we are standing alone?

I am driving on the road and all of a sudden a taxi is pushing me off the road or cutting in forcing me to move to the yellow line. I have the expectation that when we are all driving that we all have our licenses and that we are familiar with the rules of the road right?… wrong… that is my expectation… that is the rule… but that doesn’t mean that that is the reality.

 

This paw paw hit the fan…I have a Nephrologists dr. Arendse and i trust him with my life and because he came through for me so many times, i believe in him. So now its 2 years later and we are use to each other and guess what the battle isn’t over, its ongoing and i still need things from him. I am so thankful for all the help, dedication and support from this man and i can understand that he might be growing tired. If he doesn’t share my level of importance and react based on that there’s unhappiness. We are busy with disability claim with Sanlam, he is charging Sanlam to issue a letter about my kidneys and because of that letter Sanlam dismiss the claim and i go back to him for more help, does that make my request less important? I am unhappy because he didn’t discuss the letter with me first like the last time. Its ok to use medical terms but isn’t it better to explain yourself more when dealing with non medical people?…Was 2 years too long and now its all over?

How do i feel when when we don’t see eye to eye… abandoned, alone, scared and deserted. Maybe i am not understanding it properly but i don’t believe for a second that this is your first encounter. Patient – insurance company – employer … i need help, guidance and support.

There was no paw paw here…I have a Rheumatologist dr. Abrahams and he is beyond useless, i am still in search of a person who can tell me how they have helped them. I send emails and nothing gets answered, i was in hospital 6 times and he was suppose to see me each time, it happened once. He is just so busy that monitoring me and my Lupus issues don’t feature on the list… he has meant absolutely nothing and i realised it with my last visit. So the search is on… because there was nothing to begin with just the professional expectation of him doing his job properly, which he couldn’t. I can’t beg for medical opinions and help when you are getting paid to do your job… there won’t be any referrals from me…

This one scare the shit out of me… how can you call yourself a medical doctor when you don’t doctor???… i want to run as far as possible and never look back… there’s a lot of words for people like this but i will refrain from using any of them…

Going strong…My Gp’s… i have so much love for them, that is now after i dealt with my hatred towards them for not picking up the Lupus situation… yes they know nothing of Lupus and how to deal with it, so that is a given, but after the diagnosis they have been more than accommodating and helpful. I can literally call them in the middle of the night or chat to them via whatsapp. Always interested in updates from the specialists and wants all the paperwork in my file. So even though they can’t treat my Lupus, their efforts do not go unnoticed…

I still dunno what to reply to the reception and nursing staff when they see me time after time again at doctors visits, scans, xrays, etc. “you are here again”…” you need to see doctor again”… i am working on that one…

Depending on the relationship there’s expectations that need to be met and if they are not met then there’s unhappiness.

 

 


About Ash

This website is dedicated to all the men and women who suffers from any Auto Immune disease...Lupus is just one of them...the list is endless...we want to inform, educate, motivate, encourage and change the perception of the world that Lupus doesn't exists...We are real people and we fight for our lives every single day...#LupusLove from Lupus Warriors