Monthly Archives: January 2016


Hospital stay update…

Soooo…I’ve been in hospital for the past 4 days and it hasn’t been fun… It was 4 days with 4 different treatment options and a whole lot of tests… I am at the point where I’m doubting the medical field and hating Lupus more and more… My cholesterol is down […]


Lupus are my life…

Lupus are in my life… It’s been crazy at work and at home with school re opening , parent meetings, books to cover etc. Lots has happened though…I had yet another mini breakdown, because I’m not feeling well, I’m tired and I’m worried… I feel much better after my crying […]


With Lupus it’s never ending …

With lupus it is never ending… Thursday… When I say I’m ok I mean I might be having a pounding headache kidney pain nausea stiffness … I have lots of meetings and that means I can’t just take my water tablets as usual, I must time it properly and In […]


Update Jan 2016

I had a lovely week and a half break.. Can’t take too much leave because I am facing unpaid leave so I have to work sparingly with what I’ve got… i enjoyed spending time w the kids, friends and family… I’ve been struggling with bronchitis for the past week and […]


Just let me be please…

  I said ” I want to start selling Avon and Tupperware and use the commission money to raise more Lupus awareness” “Why are you wasting your time with this Lupus nonsense?” “You should focus on other more important things than to occupy yourself with Lupus and wanting to leave […]


Lupus patients suffer from…

Lupus (SLE) patients suffer from mood disorders, anxiety and depression. Although lupus is categorized by many physical symptoms it can affect mental health as well. Lupus can be a complicating illness which is caused by an overactive immune system. With medication symptoms can be managed but often the side effects […]


Cyclophosphamide chemo

Cyclophosphamide Side Effects Cyclophosphamide is used to treat cancers, autoimmune disorders, and AL amyloidosis. As a prodrug, it is converted by liver cytochrome P450 (CYP) enzymes to form the metabolite 4-hydroxy cyclophosphamide that has chemotherapeutic activity.[4] Cyclophosphamide has severe and life-threatening adverse effects, including acute myeloid leukemia, bladder cancer, hemorrhagic […]


What is Rituxan?(rituximab)

What is Rituxan? . Generic Name: rituximab (ri TUX i mab) Rituxan (rituximab) is a cancer medication that interferes with the growth and spread of cancer cells in the body. Rituxan is used to treat non-Hodgkin’s lymphoma or chronic lymphocytic leukemia. It is also used in combination with another drug […]


Medical Marijuana and Lupus

  Cannabis is considered an ideal medication to help Lupus patients cope with the symptoms of the disorder like nausea and pain. It’s also known to be an anti-inflammatory, suppressing certain parts of the immune system. “By lowering the levels of the inflammation-promoting protein interleukin-2, and raising levels of the […]